Miss America contestant Allyn Rose, a 24-year old college graduate with movie star looks is so much more than another pretty face. Although she did not make the cut to be a Miss America pageant finalist, her DNA made news around the world. Morning talk shows and tabloids gobbled up her story, eager to label her health dilemma and decisions as controversial. Strong opinions, even hate mail, have followed Ms. Rose in the weeks since she announced her intention to have a prophylactic bilateral mastectomy.
Welcome, Allyn Rose, to the path that anyone with a BRCA1 or BRCA2 genetic mutation knows so well. Our mutations are more famous than your very rare Wiskott-Aldrich syndrome but hey, I am certain those with Cowden’s, Li-Fraumeni, Peutz-Jegher or the host of other known hereditary genetic defects that predispose one to breast cancer will welcome you into the mutant fold. We need you in a big way.
Why do those in the hereditary cancer community need Allyn Rose? It’s simple. There is work to be done to educate people everywhere about the risks and choices involved in familial cancer. Allyn Rose has stepped up to the plate and said to the world she wants to make preventative health care her mission. I applaud her efforts on behalf of those everywhere grappling with the same difficult decisions her family faces.
Thank you Allyn Rose. I am certain your Mom, who died from breast cancer at age 50, and the many generations of women in your family who suffered the same fate, would be so very proud of you.